Monday, September 23, 2013

Update on Stuff

You know what I hate? Baking stuff Luke can't eat. Like oatmeal raisin cookies. K loves them and loves making them. Greg likes them for breakfast to go. Poor Luke wants one so bad he can't stand it. The chocolate fudge GF cookie I gave him is obviously not as good.


Anyway, we're two days away from two weeks gluten free. His eczema is gone, except for a brief outbreak after we accidentally gave him some gluten laced french fries. His chronic diarrhea is still a problem but his pediatrician is finally taking me seriously about it. She thinks the gluten thing is over diagnosed and wants to test for a bunch of bacterial infection type issues. Three vials of blood and a stool sample later I'm still waiting on the last of the results. Should have those by Wednesday. Doc said to stay GF for now and eliminate as much sugar and dairy as possible. Not sure how I'll ever figure out what he's reacting to if I cut out everything at once, but I want him better ASAP so...

I wanted to test for the gluten allergy but it turns out our insurance won't pay for it unless it's ordered by a GI, allergy, or neurology specialist. Really? Really. So we can pay $250 out of pocket or we can go see a new doctor (and pay nearly as much on new doc visits).  I'm tired of new doctors. I'm tired of our old doctors. One thing at a time I guess. If none of these tests come back positive then we'll move on to something else.

His early intervention evaluation was last week and that was a disaster, but he should be starting in-home speech therapy within a month. Therapist hasn't actually called to schedule yet so we'll still be going to UMC for therapy in the  meantime. I swear over the weekend he said "turn it off" (regarding the light) and he still tells us "hereyougo" every time he hands us something, so maybe he's skipping words and moving straight to sentences?

1 comment:

Allison said...

Skipping words into sentences isn't unheard of I don't think. I have just been in mental agony thinking about you having to do the gluten, dairy, sugar free stuff. Ugh! Bless YOUR HEART!!!! I cannot even being to imagine.

Yet you keep your sense of humor through it all - or at least put on a happy face despite the madness....or maybe because of the madness... I don't know. But I love ya for it. Hope you get answers VERY soon.